We know that helping to improve the lives of people living with serious medical conditions takes more than scientific innovation alone – it also requires close collaboration with patient and advocacy communities.
Our dedicated Global Patient Affairs team collaborates with groups across 博彩平台网址大全 and a broad range of community organizations in regions around the world. Together we help ensure that the lived experiences and unique needs of those affected by rare genetic conditions are integrated into our business, during research and development of potential new treatments as well as after a medicine is approved.
To help ensure that patients are always at the heart of our business decisions, we assembled the 博彩平台网址大全 Advocacy Advisory Board, which consists of eight patient advocates from Europe, the United States and Canada. This group provides insights and counsel around how we collaborate with patients, key activities, and strategies that may extend beyond a particular disease area or therapy.
The board includes advocates for communities living with genetic conditions of direct interest to 博彩平台网址大全 as well as people representing other conditions currently less connected to 博彩平台网址大全 activities.